Monday, April 6, 2015

Thankful for people like this, sharing their life about Crohns and/or Ulcerative Colitis

I was diagnosed in 2004 with Crohns and Ulcerative Colitis.  I have been on the same medication therapy since then.  Azathioprine, Asacol5 and Potassium.  I believe these chronic diseases work together somehow.  I go the washroom about 5 to 10 times a day but it is based on what I eat or drink.  If I just stick to water everything is better under control.  But who can avoid coffee, although I only have 1 coffee before I leave for work, also leave in 2 hours after having that coffee.  No accidents.

Yes my life is controlled.  Urgency is sometimes still there.  But I always give myself a two-hour window before leaving home.   Who would have thought the bathroom was pure gold!!

KUDOS to the many women and men who share their stories.  Without you we would not know what is like to have the ostomy or ileostomy bags.  THANKS again for sharing your stories.

Monday, March 2, 2015



What new therapies for IBD Can we expect?


Click on link for more info:

Saturday, November 1, 2014

It's a Gutsy job, someone has to do it.......

By Trusted Therapies Team
Trusted Therapies is a doctor and patient-powered community whose goal is to improve the lives of people affected by chronic diseases like Crohns and Ulcerative colitis.

What Doctors have been saying about the latest IBD research.



For my personal medication treatments, I am on immuno-suppressants Azathioprine, I do take Vitamin D / C / B12 as it is known that these intestinal diseases do not absorb all of the nutrients, vitamins and minerals, the body needs.  Asacol-5 and Potassium.  

Sticking to a Whole Foods diet does improve your chances for remission.  And it is worth it!!  Diagnosed 2004 

Thursday, October 16, 2014

Saturday, October 11, 2014


Always looking for food to help with my Crohns and Ulcerative Colitis and came upon this tidbit of info that may help us alleviate our inflammation and swelling we encounter almost everyday.

We are never told that certain foods can help us, we are just given prescriptions.  It is up to every individual to do due diligence in finding what works for their health.  

I am always looking out for me and any fellow sufferers out there.  So without further adue, The Avocado Seed.  I love eating avocado, but had only heard you can sprout the seed and plant your own.  Did not know you can eat the seed.  So give it a try, see if it works for you.


Top benefit of eating avocado seeds

  • Avocado seeds contain nourishing oil that is rich in antioxidants. In fact, 70% of the antioxidants are found in the seed alone and the other 30% are actually in the flesh and skin. These potent antioxidants have the ability to lower high cholesterol levels and prevent several kinds of heart conditions such as heart disease and strokes.
  • The super fruit’s seeds are also a great alternative for reducing inflammatory disease within the body, but works particularly well with easing swelling in the gastrointestinal tract.
  • You can even use it to help ease diarrhea away and to prevent and relieve constipation naturally.
  • Some find it soothing to gastric ulcers because the seed contains antioxidants in it known as phenolic compounds. These compounds contain antibacterial and anti-viral properties, which makes the seeds effective at preventing ulcers within the lining of the digestive system.

 How you prepare the avocado seed

All you have to do to get these seeds into your diet is slice open an avocado carefully, remove the seed, place it into a plastic bag and crush it with a meat mallet or hammer. After, place the crushed seed into a blender and grind it into a fine powder. Then, sprinkle the seed mixture onto meals and eat up to receive the health benefits from this amazing super food.

Tuesday, September 30, 2014


My medication regime consists of the following

  • 5-Aminosalicylic Acid 400 mg.  I take 4 pills 3 x per day
  • Azathioprine 50mg x 3 per day
  • Potassium Chloride 8meq x 1 per day
This began since Day 1 in 2004.

  • A treatment of Prednisone in the beginning to "tame" the beast.

Crohn's disease treatment takes a step forward: New guidelines issued

2014-09-19 08:40

The American Gastroenterological Society has issued new guidelines for treating Crohn's disease that is based on symptoms and treating inflammation. Past treatment was geared toward relieving symptoms that failed to prevent complications including fistulas, abscess and strictures, the group notes.
Physicians now have a new tool for treating Crohn's disease. Guidelines released by the American Gastroenterological Society (AGA) are geared toward treating inflammation rather than clinical symptoms.
Goal of Crohn's therapy is now deep remission
The new goal of therapy is "deep remission" of Crohn's disease, meaning physicians should make treatment decisions based on both symptoms and endoscopic remission.
Based on study reviews, gauging treatment based on patient symptoms fails to prevent complications that include abscesses, fistulas and strictures.
Inflammation is determined by tools that include endoscopy, the blood test C-reactive protein (CRP), MRI, CT scan and by taking tissue samples of the colon.
The AGA notes that treatment of Crohn's disease is "evolving". William J. Sandborn, MD, AGAF who authored of the clinical decision tool said in a press release: "This clinical support tool represents a big step forward for the treatment of Crohn's disease and was created using a rigorous review process."
  • The new Crohn's disease treatment algorithm include budesonide, steroids and azathioprine for low-risk patients, and biologic therapy with tumor necrosis factor (TNF) antagonists, combined with budesonide, steroids and azathioprine for patients at high risk for complications.
  • Drug monitoring is recommended for patients who lose response to biological therapy to help with decision making.
The new guidelines for Crohn's disease treatment is also designed to provide clinicians with a uniform approach for treating the inflammatory bowel disease.
Image credit: Wikimedia Commons

Saturday, August 23, 2014

That Poop is soooooo Important and deserves a Salute!!!!!


I participated in the Colon Screening Program via direction from my doctor. The program started April 2013. Of course folks have already been doing the stool test way before that.

With every test there are markers, medical range allowed for your results.  My result was Positive for blood in stool, in my case, that is a no brainer.  <50 is the marker, I am 51.  I would say that is the absolute best score one could get.  It is not necessary for me to get a colonoscopy, the doc did say if I chose to want one, then she would send me to my Gastro dude that I see once a year anyways.  My colonoscopy done in 2005 shown no polyps.

Thats it!!!!!

I am fortunate to not have to go thru this program any longer, but there are many British Columbians waiting to hear if they are to get one.  That is what I hear from folks who talk about it. The program is quite insensitive to others who indeed would qualify as they have to WAIT to hear from their health authority. Last heard 16 weeks just to receive a call and assess the score, history and if necessary the appointment.

The Importance of Watching what you dump into the Toilet

Cannot stress this enough, always look at what you leave behind.  Early detection of anything gives you a fighting chance.  There is always the Emergency Department at your local hospital should your bowel movement scare you enough to bother the folks on the phone than going in.  I opt for waiting 10 hours than 16 weeks .....

Thursday, July 24, 2014

FIT results and

Performed the FIT test and within 2 days I received my results through the website.  It showed I am positive which in medical land could mean a lot of things.  Since I have Crohns/Ulcerative Colitis, this in my mind, would be standard results.

By going through this new program, I should receive a letter, possibly 2 weeks, showing what I already know and that a Patient Care Co-ordinator will call me to discuss results and such, that has been UPGRADED TO 10 WEEKS NOW.

I had on the lab requistion that my doctor and Gastro dude be notified of the results.

What I am thinking and probably will find out later is that, folks like us, should be doing a different test, as we already will show blood in our stools.  But hey if there are other signs showing Cancer, I am all ears.

Interested in my ehealth?

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Am I eligible to use my ehealth?

To register you must:

  • Be age 16 or older, or have received a Welcome Letter from Excelleris
  • Have a BC Care Card number
  • Have had lab work within the last 30 days at:
    • Lifelabs, Valley Medical Laboratories, BC Biomedical Laboratories or
    • As an outpatient only at Vancouver Coastal Health or Providence Health Care

I give this website a thumbs up.  Follow the guidelines above and register.  You get your blood work results, urine sample results, stool sample results, and the end of the day you went to the lab, with the exception of certain tests, like stool. Chemistry tests take an extra day or so.

You have to be a level headed individual to sign up to this health site,  You know what they say KNOWLEDGE IS POWER. well that applies if you are a mature person who does not go into DEFCON 4, in an instant.  If you are that type of person, do not register and sign up. Leave it in your Doctors hands.

Friday, July 11, 2014

Colon Screening in BC

Colon screening has ramped up here in BC, or either that I have come to the age where I qualify for testing.

That said, I was diagnosed with Crohns and Ulcerative Colitis in 2005, have had only one colonoscopy, and that was during the prognosis/diagnosis stage of my diseases.  I have had only 3 stool tests since my 2005 diagnosis.  The most recent upgrade of stool testing is the FIT test, Fecal Immunochemical Test.

The current program is as follows, your health care practitioner, specialist, family physician will write a Lab requisition for you to collect the FIT kit from your local laboratory, you then perform the test in the comfort of your home.

My first attempt failed as the paper sheet that is to float on the water did not do a good job and my sample was then contaminated.  So I shall resort to more drastic measures which I will refrain from sharing, but I will follow the guidelines as to not contaminate the sample.  Return your completed sample to your Laboratory. Results do take some time.

A result letter is mailed to you and advises you that a Program Coordinator will contact you in a few weeks, to discuss the findings.  That may upset a few patients depending on their family history, what they are experiencing and seeing in their stool, etc.  There are no calming ways to help patients.  However, there are other folks in the Health Authority to assist and relieve some stress for the patient.  Check link below for more information.

Click on link below for more information from the BC Cancer Agency