Saturday, November 1, 2014

It's a Gutsy job, someone has to do it.......


By Trusted Therapies Team
Trusted Therapies is a doctor and patient-powered community whose goal is to improve the lives of people affected by chronic diseases like Crohns and Ulcerative colitis.


What Doctors have been saying about the latest IBD research.


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For my personal medication treatments, I am on immuno-suppressants Azathioprine, I do take Vitamin D / C / B12 as it is known that these intestinal diseases do not absorb all of the nutrients, vitamins and minerals, the body needs.  Asacol-5 and Potassium.  

Sticking to a Whole Foods diet does improve your chances for remission.  And it is worth it!!  Diagnosed 2004 

Thursday, October 16, 2014

EDUCATION SYMPOSIA

EDUCATION SYMPOSIUM -- CROHNS AND COLITIS CANADA

CLICK ON YOUR CITY FOR MORE INFO

and register....its Free!

Saturday, October 11, 2014

SMASH THEM AVOCADO SEEDS!!




Always looking for food to help with my Crohns and Ulcerative Colitis and came upon this tidbit of info that may help us alleviate our inflammation and swelling we encounter almost everyday.

We are never told that certain foods can help us, we are just given prescriptions.  It is up to every individual to do due diligence in finding what works for their health.  

I am always looking out for me and any fellow sufferers out there.  So without further adue, The Avocado Seed.  I love eating avocado, but had only heard you can sprout the seed and plant your own.  Did not know you can eat the seed.  So give it a try, see if it works for you.



AVOCADO SEEDS 
ANOTHER 
GREAT SUPERFOOD

Top benefit of eating avocado seeds

  • Avocado seeds contain nourishing oil that is rich in antioxidants. In fact, 70% of the antioxidants are found in the seed alone and the other 30% are actually in the flesh and skin. These potent antioxidants have the ability to lower high cholesterol levels and prevent several kinds of heart conditions such as heart disease and strokes.
  • The super fruit’s seeds are also a great alternative for reducing inflammatory disease within the body, but works particularly well with easing swelling in the gastrointestinal tract.
  • You can even use it to help ease diarrhea away and to prevent and relieve constipation naturally.
  • Some find it soothing to gastric ulcers because the seed contains antioxidants in it known as phenolic compounds. These compounds contain antibacterial and anti-viral properties, which makes the seeds effective at preventing ulcers within the lining of the digestive system.

 How you prepare the avocado seed

All you have to do to get these seeds into your diet is slice open an avocado carefully, remove the seed, place it into a plastic bag and crush it with a meat mallet or hammer. After, place the crushed seed into a blender and grind it into a fine powder. Then, sprinkle the seed mixture onto meals and eat up to receive the health benefits from this amazing super food.

Tuesday, September 30, 2014

MY MEDICATION THERAPY


My medication regime consists of the following


  • 5-Aminosalicylic Acid 400 mg.  I take 4 pills 3 x per day
  • Azathioprine 50mg x 3 per day
  • Potassium Chloride 8meq x 1 per day
This began since Day 1 in 2004.

  • A treatment of Prednisone in the beginning to "tame" the beast.

Crohn's disease treatment takes a step forward: New guidelines issued

2014-09-19 08:40

The American Gastroenterological Society has issued new guidelines for treating Crohn's disease that is based on symptoms and treating inflammation. Past treatment was geared toward relieving symptoms that failed to prevent complications including fistulas, abscess and strictures, the group notes.
Physicians now have a new tool for treating Crohn's disease. Guidelines released by the American Gastroenterological Society (AGA) are geared toward treating inflammation rather than clinical symptoms.
Goal of Crohn's therapy is now deep remission
The new goal of therapy is "deep remission" of Crohn's disease, meaning physicians should make treatment decisions based on both symptoms and endoscopic remission.
Based on study reviews, gauging treatment based on patient symptoms fails to prevent complications that include abscesses, fistulas and strictures.
Inflammation is determined by tools that include endoscopy, the blood test C-reactive protein (CRP), MRI, CT scan and by taking tissue samples of the colon.
The AGA notes that treatment of Crohn's disease is "evolving". William J. Sandborn, MD, AGAF who authored of the clinical decision tool said in a press release: "This clinical support tool represents a big step forward for the treatment of Crohn's disease and was created using a rigorous review process."
  • The new Crohn's disease treatment algorithm include budesonide, steroids and azathioprine for low-risk patients, and biologic therapy with tumor necrosis factor (TNF) antagonists, combined with budesonide, steroids and azathioprine for patients at high risk for complications.
  • Drug monitoring is recommended for patients who lose response to biological therapy to help with decision making.
The new guidelines for Crohn's disease treatment is also designed to provide clinicians with a uniform approach for treating the inflammatory bowel disease.
Image credit: Wikimedia Commons

Saturday, August 23, 2014

That Poop is soooooo Important and deserves a Salute!!!!!

TEST RESULTS

I participated in the Colon Screening Program via direction from my doctor. The program started April 2013. Of course folks have already been doing the stool test way before that.

With every test there are markers, medical range allowed for your results.  My result was Positive for blood in stool, in my case, that is a no brainer.  <50 is the marker, I am 51.  I would say that is the absolute best score one could get.  It is not necessary for me to get a colonoscopy, the doc did say if I chose to want one, then she would send me to my Gastro dude that I see once a year anyways.  My colonoscopy done in 2005 shown no polyps.

Thats it!!!!!

I am fortunate to not have to go thru this program any longer, but there are many British Columbians waiting to hear if they are to get one.  That is what I hear from folks who talk about it. The program is quite insensitive to others who indeed would qualify as they have to WAIT to hear from their health authority. Last heard 16 weeks just to receive a call and assess the score, history and if necessary the appointment.

The Importance of Watching what you dump into the Toilet

Cannot stress this enough, always look at what you leave behind.  Early detection of anything gives you a fighting chance.  There is always the Emergency Department at your local hospital should your bowel movement scare you enough to bother the folks on the phone than going in.  I opt for waiting 10 hours than 16 weeks .....



http://www.screeningbc.ca/Colon/default.htm

Thursday, July 24, 2014

FIT results and MyeHealth.ca

Performed the FIT test and within 2 days I received my results through the www.myehealth.ca website.  It showed I am positive which in medical land could mean a lot of things.  Since I have Crohns/Ulcerative Colitis, this in my mind, would be standard results.

By going through this new program, I should receive a letter, possibly 2 weeks, showing what I already know and that a Patient Care Co-ordinator will call me to discuss results and such, that has been UPGRADED TO 10 WEEKS NOW.

I had on the lab requistion that my doctor and Gastro dude be notified of the results.

What I am thinking and probably will find out later is that, folks like us, should be doing a different test, as we already will show blood in our stools.  But hey if there are other signs showing Cancer, I am all ears.


Interested in my ehealth?

 
 ArrowAbout Us
ArrowContact Us
ArrowView Demo 
 

Am I eligible to use my ehealth?

To register you must:

  • Be age 16 or older, or have received a Welcome Letter from Excelleris
  • Have a BC Care Card number
  • Have had lab work within the last 30 days at:
    • Lifelabs, Valley Medical Laboratories, BC Biomedical Laboratories or
    • As an outpatient only at Vancouver Coastal Health or Providence Health Care

I give this website a thumbs up.  Follow the guidelines above and register.  You get your blood work results, urine sample results, stool sample results, and the end of the day you went to the lab, with the exception of certain tests, like stool. Chemistry tests take an extra day or so.

You have to be a level headed individual to sign up to this health site,  You know what they say KNOWLEDGE IS POWER. well that applies if you are a mature person who does not go into DEFCON 4, in an instant.  If you are that type of person, do not register and sign up. Leave it in your Doctors hands.


Friday, July 11, 2014

Colon Screening in BC


Colon screening has ramped up here in BC, or either that I have come to the age where I qualify for testing.

That said, I was diagnosed with Crohns and Ulcerative Colitis in 2005, have had only one colonoscopy, and that was during the prognosis/diagnosis stage of my diseases.  I have had only 3 stool tests since my 2005 diagnosis.  The most recent upgrade of stool testing is the FIT test, Fecal Immunochemical Test.

The current program is as follows, your health care practitioner, specialist, family physician will write a Lab requisition for you to collect the FIT kit from your local laboratory, you then perform the test in the comfort of your home.

My first attempt failed as the paper sheet that is to float on the water did not do a good job and my sample was then contaminated.  So I shall resort to more drastic measures which I will refrain from sharing, but I will follow the guidelines as to not contaminate the sample.  Return your completed sample to your Laboratory. Results do take some time.

A result letter is mailed to you and advises you that a Program Coordinator will contact you in a few weeks, to discuss the findings.  That may upset a few patients depending on their family history, what they are experiencing and seeing in their stool, etc.  There are no calming ways to help patients.  However, there are other folks in the Health Authority to assist and relieve some stress for the patient.  Check link below for more information.


Click on link below for more information from the BC Cancer Agency

http://www.screeningbc.ca/Colon/ForHealthProfessionals/Resources.htm

To tell or not to tell 24Hours Toronto

Click link below for full story ..do our employers have the right to know

http://eedition.toronto.24hrs.ca/epaper/viewer.aspx




Thursday, July 3, 2014

Crohn's sufferer pursues dream of being a model after bikini photo exposing colostomy bags becomes an internet sensation

  • Confident, courageous.  A young lady not letting the chronic disease bring her spirit down.
  • Click on link below for her story and more photos.



  • The photo of Bethany Townsend, 23, from Worcester, has been viewed by more than nine million people and has received 190,000 likes on Facebook
  • Positive feedback has given her the confidence to become a model
  • Mrs Townsend hopes to inspire other people with Crohn's disease to feel comfortable in their skin and raise awareness of the condition
  • She was fitted with two colostomy bags in 2010 and since then has undergone a stem cell transplant when she caught MRSA and nearly died
  • Her Crohn's is still active leaving her the option of having a bowel transplant 


Read more: http://www.dailymail.co.uk/health/article-2676288/Stunning-Crohns-sufferer-pursue-dreams-model-bikini-photo-exposing-colostomy-bags-internet-sensation.html#ixzz36PgzDq6J
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Sunday, June 29, 2014

Jeff Leach --His basic message: to increase and diversify your plant intake. The foods you pick should be chewy, should get stuck in your teeth." "Eat the end of the asparagus, the stalk of the broccoli.

JEFF LEACH scientist 
"has uncovered a metropolis of microbes living in our guts.  These little bugs might be the cornerstone of great health and have the potential to improve our weight, mood, allergies, heart health and more."

This man deserves an honorable mention in my blog as he explores the microbes living in our guts.  The latest "Eatingwell Magazine, July/August 2014" writes his story and journey.  Research on the gut microbiome has exploded over the past few years.  This bold new frontier may just provide the string theory of all human disease.  
The Wild World Within
Written by Gretel H Schueller
Eatingwell Magszine July/August 2014 issue


Excerpts from the magazine, "Yogurt delivers beneficial bacteria.  But this Leek could be even more powerful."

"The human body is actually only about 25% human cells -- most of our cells are bacterial."

"The human gut holds about 3 pounds of bacteria and more than 1000 different species."

"More than 7,000 people have already joined in on the worlds largest public microbiome project: www.humanfoodproject.com/americangut

"Numerous studies also show that scrubbing away our microbes may be weakening our bodies natural defenses--something Leach has experienced firsthand:  12 years ago at age 2, his daughter was diagnosed with Type 1 diabetes, an autoimmune disease.  "My daughter was born C-section --Strike 1, breastfed very short --Strike 2, she received antibiotics at a very young age--Strike 3, and she lived in an environment where we basically wet-wiped everything and bathed her twice a day--Strike 4."  Leach feels strongly that her disease is a by-product of our culture.

"Leach is doing informal tests on himself.  Since January 1, 2014, he has been trying out different diets: fermented foods, vegan, raw food, Paleo and others.  He is following each one for 10 to 12 days, collecting daily stool samples.  By "whacking his microbiome around" he hopes to zero in on the kety foods that fuel the good and bad players of the gut. "

FRUCTAN RICH FOODS TO ADD REGULARLY TO YOUR DIET

Bananas, garlic, onions, chicory root, wheat, leeks, asparagus, artichokes and garlic contain naturally occurring fructans. Eating these foods will help you increase your fructan intake as well as the amount of overall fiber you get in your diet, since these foods also contain other types of fiber as well as fructans.
FOODS WITH ADDED FRUCTAN
Watch for ingredients label for oligosaccharides, fructooligosaccharides, FOS, scFOS, inulin or any form of chicory to determine which foods contain added fructans. Even foods you may not expect to contain much fiber, such as beverages and ice creams, may contain added fructans
"Leach believes we should already feel empowered.  His basic message: to increase and diversify your plant intake.  The foods you pick should be chewy, should get stuck in your teeth."  "Eat the end of the asparagus, the stalk of the broccoli.  Become a little more adventurous in the produce section."
THERE IS A LINK BETWEEN GUT MICROBES AND CROHN'S DISEASE.  
A study done at the Massachusetts General Hospital with over 1,500 people have shown Crohn's patients given a PREbiotic fiber supplement (not Probiotic) each day, has shown the disease symptoms have decreased significantly.

His latest book

Jeff Leach, founder of the Human Food Project 

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